What Lies Beneath

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In every photo there are 2 stories: What is seen and unseen.

We see her hunched frame, a body defeated by the resented burden of chronic pain. We see an image of her angry red thigh on the laptop in the corner, screaming to be acknowledged, validated, interpreted, as the His and Her Powerpoint presentation flashes to its predetermined technological beat.

You cannot see the hours she spent selecting 36 photos from 2 years of images, or that her husband harnessed his photographic talents to create it.

We see signs that she is still her. Her Danish-esque clogs, the floral and funky-bohemian thrift store top on the chair beside her, removed in the desperate hope that a different set of eyes will spot a new clue upon her skin, something, anything to crack wide this medical mystery.

You cannot feel her heart pound to a pandemonious*tm beat. You cannot see her steadfast man on alert, armed and empowered by his iPhone, Coke Zero and unwavering love to add / amend / better articulate any time she might falter in the repetitive descriptions of her pain. When she forgets, he remembers.

They are a team.

You do not see the 20, 30, then 40 dermatologists arriving just outside the door. Grand Rounds. You cannot hear the anticipatory chatter as the swell of physicians grows. You do not see them come into the room 2-by-2, sometimes 8, sometimes 1, to stop and stare and question and muse, then leave. And you do not see their eyes, by turns inquisitive, piteous, blank.

You do not hear when she asks him, “God, what is this LIKE?" And that he responds with a wry smile, “Like a screen test. You’re auditioning for your health.”

Yes, yes. That’s it. He gets it.

They are a team.

You cannot see the post-poking and prodding medical presentation that will go into the wee hours of the night. You cannot read the several-page summary that each Derm receives: Glomerulonephritis at age 13, 2 time-kidney transplant patient, chronic migraines, in recovery from drug and alcohol addiction, and Perivascular Dermatitis manifesting as chronic skin pain. We cannot feel it, but 40 big brains will burn through this material and maybe, maybe shine the light of new perspective her way.

You cannot see, that although she has lived in these cubicles for 34 years, it never surprises her how much she wants to leave.

Or can you?

You see the migraine building behind her eyes, but you do not see her source of her strength, the Protection and Care that has kept her sober through years of pain.

You know he snapped the shot, but you do not see that they will leave together. They will kiss, hold hands, grab some sushi. Then together, they will wait.

He may not be in the picture, but the full story is clear.

They are a team.

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Your writing is so so good! Don’t give up! Someone will figure it out. — Linda MacDonald Armstrong
Crying. All blessings and good things wished for this team. — Astrid Van Wieren
Your words never fall to move me and create a full picture. You so eloquently put into words what I witness so frequently in my job. Know that you inspire, that you are loved and supported! — Diane Gillespie
I can’t feel your pain or your love, but your descriptive prose definitely brings me closer. — Steven Montag
Aaah. That is sweet and sad and wonderful and heartbreaking. — Carolyn Soper

Poppy Fields Forever

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“Are you going to write about the irony of being in a poppy field? Being so close and yet so far?” This, my husband joked when I told him I was going outside to write.

“They’re not OPIUM poppies,” I laughed. But I kinda wished they were. Poppies. Opium. Opiates. Drugs.

Hold that thought.

There was a time where I would have relied 100% on an external fix. In short, a pill. I am a pill girl. Have been since age 14 when I began taking Prednisone, Imuran and Baby Aspirin every day to slow the Glomerulonephritis gnawing away at my kidney’s filters, sending me into kidney failure by age 18.

Pills are the best. A tiny circle of hope. Then, instant relief. Freedom from pain. Until it wears off and my blood surges hot and angry, screaming for more.

[Awkward transition]

Almost every actor I know has “done” “The Artist’s Way” by Julia Cameron. A book that helps an artist nurture their creativity. One of the weekly exercises is to take yourself on a date. Visit a museum. Go to a park and write. Sketch at the beach.

Teaching us to harness the power of self.

I wanted to see the poppies.

With the recent rains here in California, I had heard the Poppy Reserve up in Antelope Valley was bloomin’ something fierce, so I was down for a wee me adventure. Turns out, my skin wasn’t on board. (Is it ever?) But I’m tired, so very tired of my health dictating my choices. So off I went.

The drive up the 14 N is spectacular, especially right now. Fifty shades of green (sorry!) sprayed with bright yellow blooms, and the bluest of cloudless blue skies. Sometimes California is just a big show-off.

For about 40 minutes we talked. Me and Big G. I lay my cards on the table. About how I’m no longer down with His plan to keep me in chronic pain. That I’m officially exhausted, bordering on depressed. The steroid shots, steroid / peanut oil, ACV, Sarna lotion, Calamine lotion, Caladryl, Aloe Vera Gel, Capzasin, Oils, and more oils. Auto-immune tests, Immunological tests, and Viral tests. Singulair, Antihistamines, Doxycycline, Gabapentin, and most recently, Amitriptyline and Ketamine (yes, a horse tranquilizer) ointment compounded for little ol’ me.

With needles jutting out of me like tiny javelins, my acupuncturist holds my head in Reiki as I break down and cry. I carry crystals in my pocket. Pray. Meditate. Exercise. Ice. Eat raw tahini in the morning, and take Gabapentin at night. Sometimes I’m empowered by all of this, and others times I fall into a big sad heap and beg God to take it all away.

In a way, I have been waiting for this to be “over” so I can fully enjoy my life again. When the pain a 2-4, I can focus, be present for whatever is going on. My book. My friendships. The love of my life. But when my pain flares into 5-6-7 territory, I’m split focused. I want to care, but I can’t. And what gift is there to be found in that? That’s not me. That’s not who I want to be. So how, how can this be The Plan?

I bet you think I’ve forgotten about the poppies! Well, they were indeed beautiful. Defiant clusters of orange exploding against the subtle shades of desert. Elegant skirt-shaped heads that twirled away from the inclement weather. For I found a surprise atop Antelope Butte Vista point. Wind. Cold gusts of wind enveloped me, whipping my (suddenly salt and peppered! When! When did this happen!) hair back and forth. I struggled not to fall over, cementing my feet against blasts of wind that made me laugh out loud. In the midst of this mini-tempest, I found my strength. I did not fall over. And I could not feel my skin. I felt no pain.

Why do I write about illness and pain so much? It’s selfish, perhaps. But I know I am not alone. I want to find those who are clutching the sides of the same dingy, sustaining the same endless battering. I can’t lose myself to this. I've lost myself so many times to pain and the pills that rolled out one-by-one, two-by-two, five-by-five until the numbers became incalculable.

And so, I share. And then you share, and so on. Until Our power becomes incalculable.

As we crossed paths in the bathroom this morning, my sleepy-headed man had a confession,

“I had a nightmare. You were being held hostage.”

“I am being held hostage,” I answered wryly.

“Ah! A metaphor!”

Life may not be mine to dictate, but living is.

For me, an external fix may never arrive, but I do not have to be held hostage by pain. Living has always has been my choice. It was a choice to take myself on a date despite my pain.

And every time I take a step forward into the storm, I find my footing a little bit more.

Love this so much! Keep writing out loud because it makes us better humans. It is how we are taught humility and empathy. And the world needs a huge dose (I did that I purpose 😉) of both. — Karin Sharav Zalkind
Oh, Henriette. There is not one moment where I can say “I don’t understand.” Almost every word you share resonates within my inner and outer world. — Victoria Margolis-Brown
Inspirational. — Jenn Dyment
So loved this. Loved reading it. Read it twice!! Love you. Love your outlook and I cannot imagine how hard it is. I love your writing and the exceptional gift you continue to be. — Kim McIntyre-Leighton
I love you. Wrote it. Felt it. That’s all. Keep on, keeping on, baby. — Christine Oddy Shandel

What Have I Done to Deserve This?

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“What have I done to deserve this?”

In 1988, when I was recovering from my first kidney transplant in Toronto, this Pet Shop Boys hit was all the rage. I dug it, wailing along to the self-piteous phrase. For indeed, what had this 19-year old done to deserve such an immense health challenge?

And I remember the moment I realized with a shock.

Wait. This doesn’t mean I’ve maxed out my health quota. I could still get breast cancer at 32…

Or a second kidney transplant at 42.

Or recovery from drug and alcohol addiction at 42.

Or a mysterious skin condition that has challenged everything I know about myself.

Tonight, nearly 3 decades later, driving home from USC Dermatology as the sun set behind the foothills of the Angeles National Forest, the same track burst forth from my Pet Shop Boys Pandora station.

“What have I done to deserve this?”

I flinched, a flare of heat from my left arm radiating across my entire body.

It’s probably safe to assume the home crowd knows my deal, but for those who don’t, here’s the recap: As of 4 days ago, I have sustained a periodic and painful skin condition for 2 years. It is not a virus. It was not an infection. It is not auto-immune. Nor an allergy. Nor anything immunological related to my transplant. Today the 3rd dermatologist I have worked with over the last 734 days turned to me and said,

“I have no idea what is going on with you.”

At the end of 1986, when I was 18, I was nearing End Stage Renal Failure. As my BP shot through the roof, my nephrologist prescribed an experimental blood pressure med. It was a safer option for my young and totally 80’s bod. He noted,

“In 3% of cases you lose your sense of taste.”

Well, you can see where this is going. All I could taste for the next few months were hard-boiled eggs with salt and French Fries and gravy with tons of pepper. (Ah, the pre-back fat days.)

The med was discontinued, but The 3% Girl was born.

The virus that attacked my kidneys as a 13 year-old girl remains unidentified. What the doctors did learn was that my Glomerulonephritis manifested as 3 different types of scarring, not 1. Very rare. So rare, that my pathology was taken to a medical conference where the only similar scarring was found in a boy from Poland. Random.

If you calculated the odds, they might have been 3%.

There might have been a time—she wrote winkingly—when Henriette might have worn that 3% badge with pride. I mean if you’re going to have Chronic Kidney Disease that results in transplantation, you might as well score with something rare. It was kind of like making the Dean’s List of Diseases. That was all fine and dandy when my Mum’s kidney got me up and going again for nearly 23 years.

But pain? Chronic pain? Sober? For me, it has become the great leveler.

When people ask me what it feels like, I say this, “Imagine the worst sunburn you’ve ever had with an electrical current running through it.” Then I rate it on a scale of 1-10.

Today, I looked my Derm in the eye and asked one more time,

“What does it look like?”

She sighed and looked like she wanted to unleash her hair from its constrictive ponytail and hide beneath her enormous mop of hair.

“It has components of various skin diseases, but like nothing I have ever seen.”

Sounds awfully familiar.

“What have I done to deserve this?”

It no longer serves me to wear the badge of 3% Girl. In fact, I do not want to be 3% Girl. I do not want to be different. To be the unwilling owner of an unruly condition no one can tame or control. I do not want to make any Dean’s lists. I just want to be healthy. For more than what feels like a minute.

But what are the odds of that?

In recovery, I have learned one thing: The question most often asked is the one least satisfactorily answered: WHY? Instead, I must ask: HOW? How do I deal with something that may never go away?

For me there is no alcohol to melt my bones. No opiate waves to surf. There is no sugar to jack up my brain. (At least according to my acupuncturist.) There is no way around the pain. There is only through it. Day–by-day. Hour-by-hour. Minute-by-minute.

And so, how? With friends who ask, "What is it today?” When I say, “7”, they know it’s a dark day, and they comfort. When it’s a “2", they cheer.

Prayer. Meditation. Exercise. Acupuncture. Gabapentin. And an untried ointment I pick up tomorrow.

I do this with a husband who physically hurts when I cry, his love a steadfast salve for this relentlessness.

With inventories, I find acceptance. With writing, I find my purpose.

And in picking up the phone today for someone I love so much it hurts. By maybe helping her. And in realizing that none of us need experience pain alone.

How To Deal With Chronic Pain. (I should write a book!)

Oh, and pending—in April or May—something called Grand Rounds. A once-a-month Tuesday evening down at USC Dermatology. When all the dermatologists come together for a medical pow-wow to brainstorm one. burning. case.

Up next: 3% Girl.

I look forward to every word you post. No matter how busy the Sunday, I find a moment to look for your new posting from “In Pillness.” I love your voice, and I especially love your fierce heart-full courage. By telling your story unflinchingly, you are giving the universe access to your truth - and as you know if we block our truth the world loses it for eternity. You inspire and embolden me, my dear. Love and gratitude. — Christine Oddy Shandel
You make hurting so beautiful... — Shannon Gosch
No words. but I can pray to God for you, and say he has gifted you as captivating writer with your experiences. — Bridget Fogg
You write so incredibly well my little Hennybird. You’re courageous, beautiful, funny and it’s been an incredibly unique and wonderful gift to witness your love story with Kevin. — Suzie Sharratt
Keep strong, keep on hoping and keep writing, as it is a gift that keeps energizing you. — Bonnie Scott

World Kidney Day 2017

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I once worked with an older actress who schooled me to enjoy Life’s little moments, “Because there aren’t that many big ones.”

Well, this moment was one of the biggest: When we found out Kevin was a match to give me a kidney.

January 20th, 2010. In this photo, I was in chronic kidney transplant rejection. At about 11% kidney function and 6 weeks away from dialysis.

Today is World Kidney Day. If you have 2 healthy kidneys, it is worth noting what your precious fist-sized babies do. Kidneys filter your blood of waste and extra fluid, and make from 1-2 quarts of urine daily. They balance the PH levels in your blood. Make an active form of Vitamin D to keep your bones healthy. They control your blood pressure. And they make red blood cells to give you the energy you need to enjoy your life.

Really, what don’t they do except park your car!? (I know. Not my best work.)

It’s been 30 years since my kidneys completely failed. It is only because of living donors like my Mum (at age 19) and my beloved Kevin (at age 42) that I have enjoyed life beyond dialysis. And that is no life at all.

Each person can live a long and healthy life on one kidney. On World Kidney Day, consider that you are walking around with a spare part inside of you. An “extra.” A second kidney that can save someone’s life. Someone like me who was randomly struck ill as a 13 year-old girl with an unidentified virus.

Kidney transplantation often pops up as a cringe-worthy punch line on sitcoms. Nothing could be further from the truth. It is not a quick fix. It is lifelong work to lead a healthy life (Damn you skin!). But even after all this time, I still stare slack-jawed at the twice-daily handful of pills that suppress my immune system-so my body will accept Kevin’s gift. Truly a medical miracle.

Cherish your kidneys. Eat well, whole foods, not processed. Drink tons of water. Exercise. Check your blood pressure regularly. Pray. Meditate. Maybe take that “little moment” to look into living donation. It could lead to the “big moment” that will truly change someone’s life forever. And yours.

What a memory and again such perfect words. — Lesley Traynor-Smith
Beautiful post, Henny. — Tara Michelle
Thought of you first thing this morning when I saw it was World Kidney Day. You inspire us all! — Melody Boling
Such a beautiful picture! — Vincent Corazza
Another magical and so meaningful moment! Who knew that would be the outcome! — Bonnie Scott

Happy Birthday, Baby.

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There's a line in Bridget Jones' Diary when the offending mother begs forgiveness from her cuckolded husband. Heart broken, tears welling in his eyes, he concedes, "Silly Cow, I just don't work without you."

In our case, sweetheart, this happens to be literally true.

I love that my heart still skips a beat whenever I see you.

I love watching you sleep because I know at one time your broken heart wouldn't let you.

We share hashtags no-one else gets. You send me dog videos on Facebook. And after 25 years you still leave your clothes on the floor (in the beginning this was charming, then annoying, and has cycled round to charming again).

I love that you sing "Hen. On. Pills." to the tune of Duran Duran's "Girls on Film."

I love your voice, your Scottish talent and that your heart is in Jerusalem.

I love that you always, always, always do the right thing. (Except for that one time.)

I am grateful you call me every day, hold me every day and forgive me every day. You are my person, my wolf, my beaver.

You are the reason I pee.

Happy birthday, Kevin.

You are a true word artist. — Rita Montanez
Handsome couple. Beautiful words. — Stephen Rice
I love this. — Amy K. Pearson
A moving tribute. — Justine Huseth
My favorite is “You are the reason I pee.” — Tonya Lafontaine

Dear Mr. President

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Dear President Obama,

The night you were elected president Kevin and I were robbed. This was not a bad omen for you, but it did not portend well for us.

By November 2008, I had already been diagnosed with chronic kidney transplant rejection. Over the next 8 years we endured (in tidy chronological order): The Market Crash of ’08. Our dog died. My drug overdose #1. Dialysis. Our kidney transplant. Rejection of said transplant. My drug overdose #2. Rehab. Relapse. Separation. Another dog died. Again with the relapse. Kevin’s back surgery. And the long, hard road back to trust and love.

(And don’t get me started on my skin!)

There is no way to explain to the healthy what life is like for the chronically sick and their caretakers. The profound way your life is impacted on every level—physical, emotional and spiritual. And in this country—financial.

We were devastated. But there were 3 ways you and your administration helped us through the last 8 years:

1) In 2012, Kevin and I were separated. Beyond broke. Deep in medical debt. We had tried for months to get our mortgage adjusted—to save our home. We talked about dumping the house and renting. We talked about leaving LA. And then your loan modification plan saved our house. You saved our home.

2) In 2013, I received a government letter stating it was illegal for my health insurance premium to be as high as it was. It was reduced by $250 a month. I was also guaranteed no cap on my coverage—I would not be discriminated against for having a pre-existing condition. It had its pros and cons, but ObamaCare helped and protected me.

3) In 2016, you teamed up with Macklemore to address the opioid crisis in America. You and Macklemore broke down the disease of addiction and its misconceptions beautifully. “Addiction isn't a personal choice or a personal failing and sometimes it takes more than a strong will to get better. It takes a strong community and accessible resources.” I am a drug addict and alcoholic. Thank you for lending your voice.

There were the cynics, the confused who cried, “Just go back to Canada!” Indeed I am fortunate to hold 3 passports. But home is not just a place. Home has always been where the heart is.

I have been home since the first day I stood in the California sun.

We have lived in Los Angeles for 20 years. It is where our friends live. Our godsons. The doctors I love. Where we adopted 4 dogs. Where my husband saved my life with his kidney. Where I write my book. Where I got sober. It is where I found my god. LA is my home. America is my home, and you, Mr. Obama were my president.

I cried large, impassioned tears while I watched your farewell address to the nation. As real as I have ever cried. (And I have cried a lot!)

With a nod to the future you said, “Reality has a way of catching up with you…” It certainly does and I will always be grateful to you and your administration for how you eased the reality of our last 8 years.

I will not go gently into your good night, but inspired to help those around me in sobriety and maybe one day with my words.

I am not a political person, so maybe I have no right to write. But I cannot help how I feel. And I have never felt this way about a political figure.

Thank you, President Obama.

I was proud to have voted for you twice. And I am profoundly sad to see you go.

With respect,

Henriette Ivanans-McIntyre

I will read ANYTHING you write EVER! You have captured, so beautifully, feelings that imagine are shared by millions today. — Shannan O’Mara VerGow
Well there you go again. And that way with words that humbles the rest of us slobs. A beautiful and honest testimonial to a man who is leaving office with grace and dignity, two characteristics that I am afraid will be foreign to the presidency (no pun intended) over the next several years. — Stephen Rice
Wow. That was awesome and so well said. Wow...I am all choked up. — Clarence Barnes
Eloquent. Only word that comes to mind. Keep writing and inspiring Henriette! — Trey Alexander
No, YOU’VE got something in your eye... — Sarah Redux

It's a Wonderful Life

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Well, it finally happened. Allow me to explain.

It’s been a rough year. While Kevin chased his bliss in NYC this week, I remained at home struggling with the Skin Condition that Has No End. I’ve also had an on-and-off again (mostly on) chest cold for the entire month of December. So yesterday, I thought I would treat myself to one of my favorite past times—thrift store shopping. This is a reasonable activity for me to pursue on many levels, particularly after the erection of our ONE MILLION DOLLAR retaining wall. Also, quite frankly, I enjoy the hunt. It’s the closest thing I get to a drug these days, and yesterday, I needed some relief.

It wasn’t going so well. A friendly shopping tip: Do NOT try on clothes when the Chest Cold that Has No End has prevented you from getting to the gym and you have gained holiday weight before the holidays have even officially begun. And then there’s that most perplexing mystery of middle age—back fat. Nevertheless, I found a couple items and went up to the cashier. Through mopey eyes, I noticed she was young, a girl, an infant, really. Perfunctory greetings were exchanged. Then she looked me up and down, paused, and asked,

“Do you qualify for any kind of discount?”

My heart leapt. At first I thought, “OOOH, is it White-Tag Wednesday?” But then with a knowing plunk, it sunk.

“What KIND of discount?” I growled.

“Uh, if you are 50, you qualify for…”

And then I blacked out.

It shouldn’t come as any surprise—I mean I am 48. And it was not my best day: Still sick, dirty hair, no makeup, geeky glasses, army jacket, rosacea flaring, bad sleep, mid-migraine etc…

Fact: I’ve never been preoccupied with my looks. I’ve always enjoyed dressing up when the occasion called, but I’ve never been much of a groomer. I forget to trim the ‘stache, shape my brows, bleach my teeth, cover my gray, shave my legs, and I get a mani/pedi about once a year. And by the by, WHO KNEW how many people are doing Botox in their 30’s? Let’s just say I am well behind on the “grooming” bell curve.

I called a dear friend and we had a good laugh. But after we disconnected, I still couldn’t shake the crappy feeling. I knew I was obsessing, that I was completely and utterly in self. But I mean, really! It had only been 6 short years since I was carded literally everywhere I went. The convenient details I’m omitting are that in Dec. 2010 my “youthful” visage was a result of edema due to kidney failure and I was 4 mos. away from dialysis. I was also a daily drinker and pill-popper.

Today, I've come leaps and bounds with the diseases of CKD and addiction, yet the hole in my stomach widened. How could I flip this? How could I change my perspective?

As I headed for home, I thought about the body I sometimes drag around, and how much it’s endured over the last 6 years: A second kidney transplant, rejection of said transplant, one kidney transplant biopsy, 2 overdoses-one on barbiturates, the other on benzodiazepines, an endoscopy, an ulcer, daily consumption of drugs and alcohol until October 2011 (with a few relapses sprinkled in), 2 skin biopsies, the relentless stress of a mysterious periodic and painful 21-month skin condition and finally, twice daily doses of toxic immunosuppressives. I clutched the steering wheel tighter and sighed, wondering how I didn’t look 150, never mind 50.

But instead of feeling better, I started to get angry, resentful even at those who can jump out of bed every morning without a second thought for their health. It's not fair!

(News flash: It isn't fair, but neither is Life.)

I knew I was swimming in ego and self-pity and needed to get out of the pool—STAT. So this big, fat baby got into bed—with the covers not touching my skin—to indulge in one of my favorite holiday traditions, “It’s a Wonderful Life.”

Side note: If you haven’t seen “It’s a Wonderful Life,” A) What’s wrong with you? Seriously. And B) Remedy this immediately. This movie is perfection.

And the cure-all for all things self-absorbed.

If you don’t know the plot, here goes: George Bailey is a good man who has sacrificed his dreams for the sake of his small hometown, Bedford Falls. The movie opens on Christmas Eve, where we find Bailey on the brink of suicide believing his $15,000 insurance policy makes him worth more dead than alive, due to a misplaced $8000 that will send him to prison. (Although we do not discover this last detail until midway through.)

It’s a beautifully constructed movie. Bailey always does the “right” thing. Although he repeatedly steps up to the plate when called to—and finds great joy in doing so—we are also witness to his increasing frustration, that his childhood dreams are never realized.

From the opening sequence, I was wiping away tears. Over the establishing shots of Bedford Falls, we hear the multiple prayers of his many friends and family pleading for his safety. About halfway through, Bailey is granted an angel, the goofy Clarence, who affords him the gift of seeing what life would have been like for his loved ones had he never been born. (Essentially, a modern twist on Dickens’ Christmas Carol.)

But before Clarence arrives, there’s a moment where Bailey stands at his turning point, when the $8000 is missing, and he doesn’t know what to do. He looks up at a portrait of his father on the office wall. Underneath are the words,

“All you can take with you is that which you’ve given away.”

And suddenly, I understood what my self-pity was about. I realized my looking-50 funk had nothing to do with my outside; it was about what 50 represented to me on my inside. It was a watermark of sorts, a litmus test: WHAT HAVE YOU ACCOMPLISHED? I have no career. I can’t support myself. I’m always sick. I am a failure.

I had fallen into the same spiritual spiral that Bailey would. One second he was celebrating his brother’s Congressional Medal of Honor, the next he was contemplating suicide because of $8000. Ah, I feel you, Bailey. It’s easy to spiral when you are judging your insides by everyone else’s outsides. One second I was indulging in a wee bit o’ shopping, the next I was calling myself a failure.

Because I exist in real life and not a Frank Capra movie, I began to think not about how others might have suffered had I not been born—I mean please, I may be self-obsessed, but I’m no narcissist—but how many people enrich my life on a daily basis.

Even that day, I had chatted with 3 friends, left 4 VMs, talked to 2 of my sponsees I-love-so-much-it-hurts, texted with my nephew, my brother and 3 other friends. I thought about my friend, A, who introduced me to this movie and my beloved friend, J., who I would recite lines with in our 20’s. And then there’s my “Mary,” my Kevin, the only person I would die for.

An embarrassment of riches, indeed.

The movie’s end is beyond compare. It kills. Slaughters. The town rises up to collect more than enough money to save Bailey from going to jail, but it is the near final line of the movie that encapsulates the true meaning of wealth:

“To George Bailey, the richest man in town!”

By the end of this epic experience we are reminded that George is rich not because of the literal pile of money in front of him, but because of the way he has enriched the lives of those he has loved.

Like Bailey, my childhood dreams of becoming a big movie star were never realized, but also like Bailey, those dreams have changed to embrace infinitely more fulfilling ones. I can only hope I enrich the lives of those I love the way they enrich mine.

Therein lies my bliss.

Despite the heart wrenching final scene, my breaking point came at the end of Bailey’s “glimpse.” Desperate to return to the life he lost sight of, he leans over a snowy bridge begging God,

“I want to live again. Please God, let me live again.”

Every morning I do this, but last night I had to get down on my knees again, convinced I was a nothing. Then He reminded me through this wonderful film, that no man is a failure who has friends…

No matter what.

It IS a wonderful life.

The first time I saw you take that fistful of pills after your first transplant, my heart broke a little for you. And ever since, that image of a brave 19-year-old determined to do what it took to stay alive has been my inspiration when things have been tough. I wish I had told you that years ago. You have touched and delighted so many people. It is a wonderful life, because you’re in it.
On the lighter side, always go shopping with someone older than you. — Alix Godbout
You are a shining light, a beacon of hope and inspiration! I’m not family and a relatively new friend (if I can be presumptuous and call myself that) and I am honored and blessed to be included in your circle of life. Your youthful spirit, your curiosity, your brilliance, your caring soul and the love you exude from every pore defines your essence. That’s what makes YOU truly wonderful! — Marlene Garcia
Crying on the TTC...Love you! Merry Christmas and a very, very Happy New Year. — Astrid Van Wieren
Beautiful! — Kate Ladd
Henriette...You are a beautiful person and an excellent writer. It is a wonderful life!!! — Linda MacDonald Armstrong

#imwithher

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When I was 20, I worked as a janitor for a subway system. I was sexually harassed on the job and filed a complaint. The process took me to the tippy-top of bureaucracy. In the final meeting, I watched my accused get the proverbial slap on the hand, then blinked in disbelief as the moderator seemed to wink. I remember thinking, “Oh, I’m in a man’s world.” It did not feel good.

Today as I cast my vote, I stand in total awe of the women who impact my life every day. My aunt who was one of 2 women to graduate from her medical school class. My sister-in-law who is a CEO. Those openly transitioning in the face of prejudice and violence. Friends making their marks inside male-dominated industries. Friends who are mothers. Friends who work. Friends who are mothers and work. And my mother who suddenly found herself a single mom in the 70’s, and raised me to believe I could be anything.

I am not political, but I am grateful. Grateful to live in a time of empowerment and change. To be inspired by women like Hillary Rodham Clinton who admitted last night in her final message that she may not always get it right, but she will never give up. More than ever, I need to hear that message.

It is shocking how much I can take for granted as a woman today. Suffragettes. Bra-burning. Hillary. Thank you. I am so proud to be a woman today. Today, I can show up in red lipstick and heels to vote not because I have to, but because I want to.

Today, it’s a woman’s world. And it feels great.

Well said. That’s how I’ve been feeling all day, and tearing up just a little over and over again thinking of this world that my daughter is born into who has ONLY KNOWN a black president and now... — Lisa Olafson
You should post this on Pantsuit Nation — Jane Walker
Love your post, Henriette! God bless America! — Pat Ave.
Beautifully said! — Dale Stewart
Wonderful posting. — Fred Rubin

Pershing Square

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From Copenhagen to Jerusalem, to Toronto, Vancouver, Winnipeg and LA, I just scrolled through my birthday messages and pictured every one of your faces. From family, to my literary world, sober family, to my friends who might as well be related. What an amazing thing Facebook is.

On my birthday I was reminded that joy and pain are not mutually exclusive. You can be grieving and find a giggle. Be in physical agony and find gratitude. Or know deep love in the midst of the unpredictable.

In LA’s Pershing Square the homeless coexist amongst the $15 cocktail sippers, drug-deals occur simultaneous with valet tipping, and glorious architecture stands side-by-side with decimated facades. Heartbreaking. Exciting. Devastating. Inspiring. All of the above.

Every morning I pray for these things for the people I love: To have a passion. To be free from the fear of financial insecurity. For anger and resentment to be lifted from their heart. To never know a sick day in their lives. To be loved and cherished.

Yes, the greatest of these is love. The love of a child, a pet, a friend, a spouse or a God.

Do any of us ever get all of the above? I don’t know. But I hope you are happy with where you are right now. Today, I am.

Amazing pic and incredible words that spoke to me. Had to choke back tears on public transit. Never stop sharing! You nailed the juxtapositions of life so eloquently! — Amarjit Chima
That was beautiful. — William McCauley
Beautiful words, Henriette! — Graeme Lynch
Beautifully and poignantly written. — Jennifer Simser
Gave me goosebumps. — Johanna Moorehead

Of Birthdays, Bums and Black Licorice

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“What do you want for your birthday?”

Despite my perhaps atypical childhood, what with losing a parent and gaining a disease by the tender age of 13 before I’d even sprouted boobs, my mum always wanted to know the answer to that question.

In this respect, I was not atypical. I wish I could say I asked for cool and selfless things like taking my birthday money and donating it to a struggling art instillation, but I wanted things like Barbie’s Dream House with the Elevator, books and oh, a certain pop star doll with purple socks.

For the last 25 years, my husband Kevin has picked up where Mum left off.

“What do you want for your birthday?”

“Nothing. Well, maybe some black licorice.”

This has been my standard reply for some time now, because after your man gives you a kidney, there’s just no topping that. Also, once I got those boobs (Insert flat-chested joke here), I never really wanted things.

Yesterday was my 4th trip to see my new Derm, Dr. A. For those of you not in the itchy-scratchy loop, my body has endured a 19-month periodic and painful skin condition that has the great medical minds of Los Angeles scratching their heads unironically. In this piece I may sound glib, but it has been and remains no fun. So despite Dr. A’s valiant attempt with Capzacin (chili pepper oil), DermaSmoothe (peanut / steroid oil) and an unsuccessful round of Gabapentin, I was back down at USC. Reining in my inner Aurora Greenway, I asked for a steroid shot politely like a good Canadian girl does.

The steroid shot (Kenalog 40 mg) is a temporary measure, and if overused this treatment can backfire, but even as I post this I can barely stand the discomfort, so Dr. A went for it. There was one magical Sunday 10 days ago when I felt like the pain had finally disappeared, and my heart was ready to burst with gratitude. Angels sung, birds twittered. I thought, “Thank you, oh, thank you, skin gods. I no longer feel the need to fantasize about swimming with penguins through the frigid waters of Antarctica anymore.”

And then it came back.

“And you haven’t been doing anything different?” Dr. A. asked.

“No. I lead a simple life. I write. I take care of myself and my husband. I go to meetings.”

And then she stopped, eyes sparkling from a most youthful face. And when I write youthful, I’m not talking the kind of youth that comes in an injection—starting with “B” and ending in “X”. I’m talking age. The doc’s just young. She’s easily 15 years younger than me, and seeing as today I’m 48 that makes her… Anyway, back to me.

“I just want to tell you how heroic that is,” referencing my sobriety.

There was a story here, something besides a genuine appreciation for my recovery. I, in turn, appreciate a doctor even acknowledging the disease of addiction exists. In 2010, after an overdose on pills, I was sent home with Xanax and Ambien—two highly addictive medications. How does that happen? Well, it happens when the medical world does not understand addiction. For those not up on this story, stay tuned for my award-winning, memoir-in-progress, “In Pillness and in Health.” But, I digress.

(Is digressing even a thing anymore?)

In he came, the cutest little pocket nurse, C. He also orbits the Universe of the Young. You could take every cute trending hashtag and apply it to him and he would never know. Yes, because it was my 4th appointment, I now know that C. does not use social media. Nope. Not Facebook. Says Nada to Instagram and “No, thanks” to Waze. (Calm down, Angelenos, he uses Google Maps.)

C. asked me to lie on my abdomen on the table as I apologized for my lack of undergarments. Which is weird, because those who know me know I am a die-hard commando girl.

“We’re all pros, here,” C. reminded me. “That’s for sure,” I thought to myself. Henriette Inc. Celebrating 35 years of professional patient-ism.

As he prepared the area, C. asked me what I was up to that evening. I hoped he was as deep into this distraction technique as I was. I mean, I didn’t want him looking at my 48-year old ass anymore than I’m sure he wanted to.

“I’m going to a meeting with one of my dear friends.” And, Wham-O! Hello, steroid shot.

After it was over, I could tell it wasn’t over. It was in the way he leaned against the medical cabinets. The way the light in his eyes dimmed. The way his shoulders slumped with an unidentified weight.

“So…when did you know…” he began.

“That I was an addict?”

The weight on his shoulders was his younger brother.

I told him in a way, the disease took me down quick—from dabbling to dependency in a few short years. That I lost the power of choice at age 40, and by 42 I was in rehab. I told him there was nothing they could do to make his brother want it. You cannot give anyone the gift of willingness, but that by not enabling him, he might get there quicker. C. should not take how his brother behaves personally. That I lied many, many times straight into my sweet husband’s face when he stood in the way of my addiction.

“I drank vodka on my husband’s kidney.”

“Your husband gave you a kidney?”

“YES!” And I yanked my hospital gown high for him to see. I pointed to my abdomen, showing him my two scars. “This is my husband’s kidney and this one is my mum’s.”

Cue: Soft intake of breath.

“Woah! You’re like…the million…the…”

“The bionic woman?”

“Yes!”

“You’re too young to know that reference.”

“I’m up on my pop culture!” And we laughed. Two strangers in pain finding joy.

(As an aside, I had totally forgotten about my major Lindsay Wagner crush.)

Turns out, Dr. A. was not the one with the sobriety story. It was her nurse, C.

I told him to above all, get help for himself and his family, including his brother if he ever got willing enough. Then his eyes brightened just a bit.

“Thank you, Henriette.”

“What’s your brother’s name? I will say a prayer for him tonight.”

“Kevin.”

Cue: Soft intake of breath. And maybe some welling of the eyes.

"Kevin. That’s my husband’s name.”

“What do you want for your birthday?”

I still don’t want things, unless health is a thing. It’s probably all I’ve ever wanted since I was 13, and it’s the only thing I’ll never really get.

It has been sung, you can’t always get what you want, and that includes birthdays. But pain—physical, emotional, spiritual, what is to be made of pain? Once upon a time, I did not know what to do with pain. I kept it to myself and it nearly killed me. Now, I believe the more we talk, write, sing and share our pain, it can be transformed into joy. It will be joy.

That’s all I want.

Oh, and black licorice.

I’m sitting at Caroline’s swim meet with tears rolling down my cheeks. I so understand your overall experience, from the pain to finding the bright side of a shitty situation, to laughing in the face of fear. I love it when you write. It makes me happy. — Amy Maguire
Wow such a powerful piece of writing. Such a gift!!! — Karin Sharav-Zalkind
This post, like you, is shatteringly glorious!!!! — Thom Allison
Henriette, this is just beautiful. — Donna Fletcher
I’ve missed these beautiful stories on my timeline! —Fredericka Meek
“It happens when the medical world does not understand addiction...” Cannot wait to read your memoir. — Suzanne Hodges